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What You Don't Know Can Kill You

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But You LOOK Good: A Guide to Understanding and Encouraging People with Chronic, Debilitating Illness and Pain!is a 52-page booklet that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them.

It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!

This booklet gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as an organization to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not "look" sick or in pain.

Moreover, it gives them simple, pragmatic ways to truly be an encouragement, "What to say," "What not to say" and "Why," along with "How to help." Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!

Contents of Book:

About The Invisible Disabilities Advocate
About the Author
Dedication To Sufferers and Their Loved Ones
Acknowledgements and Thanks
Foreword: A Tribute to an American Heroine

Part One: But You “LOOK” Good!

What Is A Chronic Illness, Anyway?
How Can They Be Ill? They “LOOK” Fine!
So, They Have “Good” & “Bad” Days, Right?
What If They Start “Giving In” To The Illness?
But, I Just Do Not Understand!
I’m Always Saying The Wrong Thing!

Part Two: I Never Know What to Say!

It Seems Like I Can Never Get It Right!
I Still Do Not Understand…!
Couldn’t I just Try To Cheer Them Up?
But I Really Think My Suggestions Are Helpful!
So, Why Do I React That Way?
What “Discourages” Them?
What “Encourages” Them?
Being A Comfort In The Face Of Tragedy

Part Three: I Never Know What To Do!
The Balancing Act!
Dreaded Limitations!
But, Where Do I Start?
So, What Can I Do?
And, What Else Can I Do?

Part Four: Conclusion
Contact Information

"But You LOOK Good" gets to the heart of why our friends and family have difficulty with our illness. Often loved ones are enlightened as to why their well-meaning advice is not always well-received. Moreover, it gives them simple, pragmatic ways to truly be an encouragement.

This is the best book I have ever read in regard to invisible disabilities! I have had such a hard time explaining what I go through and how I feel. I cried and cried reading the book because it described me to a tee. I think you are a wonderful person for putting all of this in writing and making it understandable. Thank you so much." - Debbie, Virginia

I just finished reading your booklet and feel like bawling in relief that you have identified and eloquently described what is helpful and what is not for people with chronic illness. You put into words what I have felt for 20 years! Now I can pass this information on to my family and friends and others who suffer." - Sandy, Colorado

I am the President of the American Behcet's Disease Association. I have read your booklet and it is great. We plan to have them available at our Walk for a Cure, and also the medical conference. Thank you for all you do." - Cathy Fornabaio, President of the American Behcet's Disease Association (ABDA) www.behcets.com

xThe members were thrilled with the booklets! We had the group break into separate areas - tn'ers & support persons, and had lively discussions for several hours. The families and friends attending went over the booklets and discussed how they related dealing with their loved ones. They found so many good ideas and tips, it was truly an enlightening meeting for them! - Ruth, Pacific NW TNA Support Group Facilitator www.tna-support.org

Author: Sherri Connell
Published by Invisible Disabilities Advocate, 52 pages, paperback

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